6 tips to help you through your baby’s time in the NICU – Twin Tuesday

About a month ago, I included my feelings on World Prematurity Day in my November WUW post. Looking at those pictures brought back so many memories of that time in our lives and I haven’t been able to stop thinking about it! Today the older boys and I made some Christmas cards to send to families with babies currently in the NICU. I know firsthand how isolating it can feel when life goes on around you but you feel just stuck and helpless. These families and sweet babies are in my prayers this holiday season.

Thinking so much these past few weeks about our experience after our twins were born gave me today’s Twin Tuesday post. I’m going to share the things we learned while we were there that helped us get through our experience in the NICU. While our babies were only there for a short time in comparison to babies born much earlier, I hope that the things we learned will help other mommas facing a similar situation. Please know that you are NOT alone. This is part of my Twin Tuesday series but whether you have one baby or two or more, this is for you!

It’s okay to not be okay.

I woke up the morning before our babies were born at 35w4d with no signs of labor, assuming that they were in the same optimal position they had been in to try a vaginal birth. I went to work just like always and around 11:00, I just started feeling weird. I worked at a hospital so I walked over to labor and delivery just in case. Our babies were born via c-section and whisked away from me for emergency medical care accompanied by my husband by 2:25pm. I was so completely unprepared for every moment of that almost 3 1/2 hours.

Now, coming down from post-partum twin hormones is NO joke paired with struggling to come to terms with an unexpected c-section and the fact that my babies were not with me. I spent the first few days in pretty much constant tears. My twins were my third and fourth babies so I knew how to be a mom and I knew what to do after my babies were born. But this situation was so far out of my control, I literally just didn’t know what to do. It was really, really hard.

It wasn’t until weeks later after our babies were home that I was talking to one of my neighbors and she innocently asked how I was doing with everything. I said I was doing “just fine!” through tears. (Lies. ALL lies.) She said “It’s okay to grieve the birth experience you thought you would have. It’s okay.” And I realized then that’s exactly what it was.

I was so sad that the birth my doctor and I had hoped for went out the window with no warning. I was so sad that I wasn’t able to be the first one to hold my babies after they were born. I was so sad that I didn’t get to place them on my chest and look at their tiny fingers. Yes, I was unbelievably grateful for the immediate care they received. Those doctors literally saved their lives. But it was okay to grieve the loss of the birth and the days following that I had hoped for. If you have those feelings too – it’s okay to grieve that loss.

Ask questions!

When members of your health care team are in the room, ask your questions! If they say something you don’t understand, ask. If you don’t know what one of the monitors or machines do, ask! It’s incredibly intimidating to walk into a room full of machines helping your baby but understanding what they each did helped me feel better.

I became overwhelmed with all the different stats they would collect and possible problems they would find on a daily basis. We found it so helpful to be in the room when the healthcare team came around for rounds so that we could hear the report and know what questions to ask.  I became close with one of the residents on our team and asked her to explain what each thing meant and what that potential problem or success would mean for us. It helped me process what was going on and feel more involved in their care.

Mom as much as you can

For the first few days when I would visit Reid, I mostly sat in a chair and watched him. It was such a weird feeling to have to ask someone else for permission to hold your own child. One of the night nurses asked me if I wanted to change his diaper but I was nervous about all the cords and monitors. She taught me how to move everything properly and how to hold him when I wanted to. She said that as nurses they love when parents get involved and honestly, I didn’t know I could! From then on, I changed his diaper whenever we were there, Josh or I tried to be there for every feeding and I cuddled him every chance I got.

I immediately started feeling like his mother again doing those simple tasks to care for him. It helped us bond and helped my mindset so much. Certainly it depends what level NICU your child is at but ask the nurses what you can do to help. Ask them to teach you!

Take care of yourself

I know this one is hard. I sucked at it. Try to remember to take care of yourself too. Drink water. Eat something that isn’t donuts. Take a breath for a few minutes. Rest when you can – especially if you’ve had a c-section. Your healthcare team is there for you. Trust them to take care of your babies when you leave the hospital or try to get some rest. Our hospital had a phone number that we could call to check on our babies or tell them that we would be there for the next feeding. Ask if your hospital has something like that.

You have babies to take care of but you can’t do it running on empty all the time. You’re a better momma and better able to handle this emotional situation when you take care of yourself too.

Take advantage of family programs

Our NICU offered a lounge for parents with good snacks, couches and a tv. They had signs for support groups, free meals and they would give you a free pass for the parking garage. We didn’t know about some of these things until Reid was almost discharged so ASK! If your hospital offers some of these things, don’t be afraid to use them. In these difficult situations, every tiny helping hand makes a difference.

Allow other people in

Having your brand new baby in the NICU can be all consuming and no one really understands what it is like until faced with that situation. I found it exhausting to explain the details to anyone what was going on so I just didn’t. I thought it would be easier but in the end it was actually incredibly isolating. By not letting anyone in on what was going on, I had to bear the burden and stress alone.

When Luke was released to come home and was having trouble gaining weight, my doctor talked about him being readmitted to the hospital. I reached a total breaking point and called my mom to unload. It helped me so much that I started calling her multiple times a day when we would have updates. It’s not like she could really do anything to make the situation better but just knowing someone else was thinking about us and praying for the specific problem changed everything for me.

Let people in. Lean on your spouse and support system and try to talk about how you are feeling. They can’t completely understand but having people in your corner makes a big difference.

That’s Twin Tuesday for today! There is so many things on my prayer list these days, but those strong NICU mama bears are sure towards the top.

For more Twin Tuesday topics, check out:

How to live life with newborn twins

How to include older siblings when you have infant twins

Preparing for your twins